Specialist schools - a few months ago I would have hesitated but definately not anymore. I want Dylan to go to a school where other children do not treat him badly, where he is understood & where he doesn't have to feel bad about who he is.
Question - have you ever or do you still feel envious when you see friends children of a similar age being able to do all the age appropriate things they should be doing when your child can't?
Tracy - Community Champion
Posted by bumblebee
on 28th October 2009
at 19:53
Honestly...yes. It breaks my heart to see other children Hollie's age learning how to socialise and looking forward to going out to parties. I hate saying no to Josie when she asks to go for a walk with her friends because she has no idea of personal safety and is too impulsive. I also feel sad when kids stare at Jack because he has so many tics that he stands out as being very different.......I wish my children never knew what they were missing or how it could be, but they are reminded all the time as are we.......I look at other families some times and think they don't have a clue how lucky they are just to be able to take so much for granted......So yes I am envious......although, and this may seem a bit odd, in answer to my earlier question - would I give them a pill to cure Autism, the answer would be - no. I love them for who they are and don't want them to change. I'd like life to be easier for them, but I don't want them to change.
Question: Autism....disability or difference????
Claire - Community Champion
Posted by Leanne
on 28th October 2009
at 23:51
Difference.
I feel that they just see and experience the world differently and learn differently.
Its just a case of discovering the correct educational /parental teaching strategies.
Question - What is your favourite way to de-stress ??
Leanne - Community Champion
Posted by Snowdrop
on 29th October 2009
at 12:29
A couple of G&Ts, a takeaway, choc's, hot bath & massage from hubby (not a lot then!!)
Question - do you feel friends and family avoid talking to you about your children & autism?
Tracy - Community Champion
Posted by bumblebee
on 29th October 2009
at 18:48
Tracy....I so agree with the de-stress tequnique!! Yes, my family do avoid talking about it....it is as if Autism is a swear word in my family...funny really because lots of them have it too, they just don't know it! I am luck to have friends who are fantastic and if they don't understand something about the kids, they ask. I much prefer this than skirting around the subject!
Question: Do you think you are more leanient with your child because they have Autism? (in relation to bad behaviour, not sensory meltdowns!)
Claire - Community Champion
Posted by Snowdrop
on 29th October 2009
at 22:10
No I'm not more leanient with Dylan since he got his diagnosis as I'm a bit of a control freak so it would be a fight with myself to let him get away with more but when he does something I continually ask myself if his being naughty or somethings wrong with him! I don't think I've quite got it yet but am trying!
Question - how do you tell the difference between naughty & meltdown?
Tracy - Community Champion
Posted by Leanne
on 30th October 2009
at 00:09
Naughty is willingly doing something to get a reaction.... meltdowns are a response due to frustration of some sort.
Do you think there should be specific advice/training given on how to parent Autistic children , once a diagnosis has been given ??
.Leanne - Community Champion
Posted by Snowdrop
on 30th October 2009
at 10:02
definately - I would love to get some training on how to parent an autistic child as sometimes I feel like I don't know enough
Question - what do you think the main difference is between parenting an autistic & non-autistic child?
Tracy - Community Champion
Posted by bumblebee
on 30th October 2009
at 15:37
Having to get the right education and support that seems to come so easily to other parents....and not being able to go to all the places other families can and have the same expieriences because our kids can't cope....On a positive note though, I also think we are lucky to have such amazing kids that bring so much more to our lives....
Question: How do I stop being so distracted by this forum when I'm meant to be getting on with my work??! No not really......It's much more interesting!! :0)
Question: What is the first bit of advice or information you would give a parent who's child has just been diagnosed with Autism?
Claire - Community Champion
Posted by Leanne
on 1st November 2009
at 19:17
Hi
I would recommend that they dont panic.. join a support group (treehouse of course) and find someone who has similar parenting beliefs as themselves and get as much info from them as possible.And of course trawl the internet for as much info as possible.
Question
Why do you think that the general opinion is that Autism can not be recovered from ??
![SiftGroups.com [opens in a new window]](sites/www.talkaboutautism.org.uk/themes/zen/treehouse/images/siftGroupsLogo.gif)
Posted by
Snowdrop
on 28th October 2009
at 19:40
Specialist schools - a few months ago I would have hesitated but definately not anymore. I want Dylan to go to a school where other children do not treat him badly, where he is understood & where he doesn't have to feel bad about who he is.
Question - have you ever or do you still feel envious when you see friends children of a similar age being able to do all the age appropriate things they should be doing when your child can't?
Tracy - Community Champion
Posted by
bumblebee
on 28th October 2009
at 19:53
Honestly...yes. It breaks my heart to see other children Hollie's age learning how to socialise and looking forward to going out to parties. I hate saying no to Josie when she asks to go for a walk with her friends because she has no idea of personal safety and is too impulsive. I also feel sad when kids stare at Jack because he has so many tics that he stands out as being very different.......I wish my children never knew what they were missing or how it could be, but they are reminded all the time as are we.......I look at other families some times and think they don't have a clue how lucky they are just to be able to take so much for granted......So yes I am envious......although, and this may seem a bit odd, in answer to my earlier question - would I give them a pill to cure Autism, the answer would be - no. I love them for who they are and don't want them to change. I'd like life to be easier for them, but I don't want them to change.
Question: Autism....disability or difference????
Claire - Community Champion
Posted by
Leanne
on 28th October 2009
at 23:51
Difference.
I feel that they just see and experience the world differently and learn differently.
Its just a case of discovering the correct educational /parental teaching strategies.
Question - What is your favourite way to de-stress ??
Leanne - Community Champion
Posted by
Snowdrop
on 29th October 2009
at 12:29
A couple of G&Ts, a takeaway, choc's, hot bath & massage from hubby (not a lot then!!)
Question - do you feel friends and family avoid talking to you about your children & autism?
Tracy - Community Champion
Posted by
bumblebee
on 29th October 2009
at 18:48
Tracy....I so agree with the de-stress tequnique!! Yes, my family do avoid talking about it....it is as if Autism is a swear word in my family...funny really because lots of them have it too, they just don't know it! I am luck to have friends who are fantastic and if they don't understand something about the kids, they ask. I much prefer this than skirting around the subject!
Question: Do you think you are more leanient with your child because they have Autism? (in relation to bad behaviour, not sensory meltdowns!)
Claire - Community Champion
Posted by
Snowdrop
on 29th October 2009
at 22:10
No I'm not more leanient with Dylan since he got his diagnosis as I'm a bit of a control freak so it would be a fight with myself to let him get away with more but when he does something I continually ask myself if his being naughty or somethings wrong with him! I don't think I've quite got it yet but am trying!
Question - how do you tell the difference between naughty & meltdown?
Tracy - Community Champion
Posted by
Leanne
on 30th October 2009
at 00:09
Naughty is willingly doing something to get a reaction.... meltdowns are a response due to frustration of some sort.
Do you think there should be specific advice/training given on how to parent Autistic children , once a diagnosis has been given ??
.Leanne - Community Champion
Posted by
Snowdrop
on 30th October 2009
at 10:02
definately - I would love to get some training on how to parent an autistic child as sometimes I feel like I don't know enough
Question - what do you think the main difference is between parenting an autistic & non-autistic child?
Tracy - Community Champion
Posted by
bumblebee
on 30th October 2009
at 15:37
Having to get the right education and support that seems to come so easily to other parents....and not being able to go to all the places other families can and have the same expieriences because our kids can't cope....On a positive note though, I also think we are lucky to have such amazing kids that bring so much more to our lives....
Question: How do I stop being so distracted by this forum when I'm meant to be getting on with my work??! No not really......It's much more interesting!! :0)
Question: What is the first bit of advice or information you would give a parent who's child has just been diagnosed with Autism?
Claire - Community Champion
Posted by
Leanne
on 1st November 2009
at 19:17
Hi
I would recommend that they dont panic.. join a support group (treehouse of course) and find someone who has similar parenting beliefs as themselves and get as much info from them as possible.And of course trawl the internet for as much info as possible.
Question
Why do you think that the general opinion is that Autism can not be recovered from ??
Leanne - Community Champion