is i autistic?

it's only in the past few months (thanks to media coverage)  that i've  wondered if i'm on the autistic spectrum.

 i think i'm probably high-functioning aspergers<p>

 i'm in my late 50s but i can identify with a lot of the odd behaviours exhibited by autists.

my school nickname (not affectionaly endowed) was "the creep" because i was preternaturally uncommunicative and hardly ever spoke.

i recently took the online baron-cohen test and scored 42 which apparently puts me into the autistic category so i went to my GP and asked to be referred to psychological services for diagnostic tests to confirm (or, of course,  if i'm deluded, to scoffingly rebut) this autistic hypothesis.

i think autism would explain a lot of the difficulties i have had negotiating my way through life though it's conceviable that i'm mistaken and that i'm not autistic but completely insane instead.

looking online i had located the lorna wing centre which struck me as ideal because they seem to be very experienced in all aspects of autism and appear to look at the condition holistically - http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=1841 

my GP wouldn't consider it because i live in southwark and the lorna wing centre is in bromley so he's referred me to the local mental health team.

owing to delayed diagnosis there probably are some mental health issues meshed into and entangled with the autism but i wonder if a jack-of-all-mental-trades psychiatrist is best equipped to help me.

 

Hi Michael

First of all, welcome to the group.

My ex-husband was diagnosed with Aspergers in his late 40's after reaching a critical stage in his mental health.  He was diagnosed through the local CAMHS Psychiatrist and received cognitive behavioural therapy and some anger management which was necessary.    He is also on long term anti-depressants for severe depression.   I think this is generally the way it works for those considered adults (16 and over) or at least that's how it works up here in Glasgow.

You might want to pop into the neurodiversity room on the forum which is for those on the spectrum to converse free from neurotypical intervention  :)  

http://www.talkaboutautism.org.uk/forums/autism/neurodiversity-room/1187

Also the Member Q&A thread for this month is with Damian who is also on the spectrum and I am sure he would be happy to chat with you.

Josie - Community Champion

Hi Michael,

I know of some adults who have gone through the diagnostic process at the Maudsley hospital not far from you. They are know as being an international centre of excellence and from what I have heard, I'd definately recommend it. My daughter was diagnosed in the young persons section and they were brilliant...I am pretty sure that Lorna Wing's centre, although it does cater for males too, it specialises in female, hard to diagnose Autism/Asperger Syndrome and the associated mental health problems which often mask the autism. She is retired now and there are a few excellent Psychiatrists who run the center for her. I wonder if the Maudsley would be an ok option in light of this, but of course it is completely up to you. What are your feelings on this?   

Claire - Community Champion

Hi Michael, just wanted to wish you a warm welcome to Talk about Autism.

You might like to speak to Damian...you can find him here:

http://www.talkaboutautism.org.uk/forums/general-discussion/member-qa/2878

Hi Michael,

 

My son was diagnosed by a Professor Turk...who used to practice in our area London Borough of Sutton but I have been told that Professor Turk has moved to the Maudsely...he is fantastic (one of the best in his field) and assuming he sees adults as well as children it may be worth checking out.

 Good luck

Hello,

I am 36 and was diagnosed with Asperger syndrome last year at the Maudesley in London.  It was a difficult process, with my initial GP being very unhelpful.  I had to get a local paediatrician and the Kent Autistic Trust to talk to my GP on my behalf + then a different GP referred me.  The Maudesley were unequivocal and diagnosed me on the day - saying that I had 'indicators in all categories'.  I have been successful academically as an adult - yet school life was a disaster.

Autism is largely stigmatising as a social label and public knowledge is very poor - one can have many strengths as well as weaknesses - I also took the online test and scored 42 (although not the best test).  The diagnostic criteria have never made much sense to my perception of myself (more how others see me!) - the best place to go is autobiographical books:

Claire Sainsbury - 'Martian in the playground'

Temple Grandin - 'Thinking in Pictures'

Donna Williams - 'An inside-out approach'

It is thought that people from Einstein, Wittgenstein and Bill Gates have Asperger's - it is not a bad club to be in.  My son has 'classical autism', yet is intelligent in his own way - he is similar to me in many ways, yet also different - the spectrum can be very complex!  If you want to ask Q's - then go to the montly Q+A strand - if you want to just talk - the neurodiversity room would be good (as others have said above).

Damian

thanks for all the responses.

i know the maudsley well - not from having been an inpatient i hasten to add but when i was homeless as a young man i used to pop in to the maudsley regularly to use the showers and have a free meal in the canteen.

i imagine they've tightened up their security procedures since - at the time anyone could walk in and wander around.

i knew a couple of drug addicts who were patients and they let me know about this - apparently there were some semi-vagrants who more-or-less resided permanently there without being formally registered though i didn't have the nerve to chance clambering into one of the beds for an overnight stay. 

i've been referred to mr hugh jones - http://www.biomedexperts.com/Profile.bme/650567/Hugh_M_Jones - who seems to have a worrying interest in medicating schizophrenics.

i mentioned to my GP that i was raised by my grandmother who was (IMO) an undiagnosed and untreated schizophrenic so let's hope mr jones doesn't jump to hasty conclusions and try to connect me to a thorazine drip as soon as i walk into his consulting room.

Damian  - interesting that your son may have inherited some of your autistic genes : the wife of my GP researches into genetic factors involved in autism (or so he mentioned in passing) although the GP himself seemed more interested in positing schizophrenia/depression as my primary disabling factors which i believe is wrong. 

 

 

Hello Micheal,

Interesting story - seems that you probably have had an 'interesting' background (don't worry - me too!).  Looking at the link concerning Dr. Jones - I agree, all of his research has been concerned with Schizophrenia - if you want to be seen regarding ASD, this is probably not the right person to see.

Some time before my diagnosis, I went to a G.P. after collapsing from dehydration at work - I told him that I was very stressed and overworked as an FE teacher.  Probably due to my monotone voice, he thought I was depressed, offered me drugs and printed a list of symtoms from the internet to look over.  I went back and told him (as I said the first time) that I was not depressed, yet I had been at a couple of times previously in life + this was not one of them.  He refused to believe that I may have actually been stressed by being overloaded by an $%^& of a manager and offered me drugs again (I refused)!

When I was a child, the psychologists thought I had all soughts - I avoided them as much as possible until recently, because I read autobiographical accounts after my son's diagnosis - read bits on asperger's / savant syndrome / high-functioning autism - and the pieces of the puzzle started to fall into place.  I have met many with a diagnosis of Schizophrenia or Depression, who are probably not at all, yet probably have Asperger's.

Who referred you to this Hugh Jones fella + where does he work?  You need to see an ASD specialist surely???

Damian

my GP referred me to see mr jones.

i believe hugh is on the staff at KCH but appears at local health centres as part of community outreach.

he may regard it as impudent if i stroll in immediately demanding to see someone else better qualified to deal with my condition at the maudsley.

the problem with the NHS is that unless one is a super-confident person, even for those without autistic problems, it's difficult to avoid adopting  submissive/obsequious body-language - whereas, if a person has plenty of money and can see a specialist in harley street then he/she can be much more assertive in stating what is wanted and expected from any consultation.

that's my feeling anyway.

i don't think anti-psychotic drugs or anti-depressants would help though i'd be willing to try something innovative :

 http://www.express.co.uk/posts/view/162022/Health-Drugs-treatment-to-reverse-autism-is-foundHealth-Drugs-treatment-to-reverse-autism-is-foundHealth-Drugs-treatment-to-reverse-autism-is-foundHealth-Drugs-treatment-to-reverse-autism-is-foundHealth-Drugs-treatment-to-reverse-autism-is-foundHealth-Drugs-treatment-to-reverse-autism-is-foundHealth-Drugs-treatment-to-reverse-autism-is-found

 

 

 

 

 

Hello Micheal,

I would go back to your G.P. + say that KCH does not in your knowledge have an ASD diagnostic team, yet specialises in Psychosis and Neurosis + ask for him to make an appointment at the Maudesley (who are the recommended experts in adult diagnosis).  Or just ask them what the reasoning behind the referral to Mr. Jones was (other than convenience?)?

I got backing from the Kent Autistic Trust - is there a similar body in your area?  Or an NAS centre near by?

Anti-depressants are for people who are depressed.  If you are not depressed, than you probably don't need them - I have always avoided psychopharmacology.  If someone is really struggling with something, it may be needed however.

Perhaps see this Dr. Jones + say 'I think I may have Asperger syndrome - where do I go for help - or do you have diagnostic expertise in this regard?' - if he says he does have expertise, yet you don't think he does - then you may have a problem.

Can anyone else help Micheal with this - getting a diagnosis was very difficult for me - finding the right people to refer me etc. - can anyone else on the forum help here???

Damian

Hi Damian

Just a quick thought but under the NHS 'choices' scheme, doesn't everyone have the right to request exactly who they want ?? 

Leanne - Community Champion