Hi! From me to you!

Hello everyone!

My name is Hilary, I'm mum to three DS1 is 18 with ADHD and Dyslexia, DS2 is 14 with ASD and Dyslexia, DD is 11 with ASD, Severe Dyslexia and waiting to get ADD confirmed.

My husband of 22 years was Dx'd with OCD just over 15 years ago, he has dyslexia and is more and more convinced he is also somewhere on the Autistic Spectrum.

I lead a highly stressful, yet interesting life trying to juggle the needs of each member of my family.

You never know what is around the next corner! 

Hi Hilary

Welcome to the group.  I have thre kids also, a son 19 who fits the criteria for Aspergers but does not want diagnosed, a daughter 16 who is just a typical teenager and my youngest son who is almost 15 with a diagnosis of Aspergers.  I was married for 25 years and my ex husband was diagnosed with Aspergers about a year after our divorce. 

You certainly have your hands full there, but like you say life is always interesting and indeed rewarding when you are privileged to have such diverse individuals in your family, at least that's how I feel about it most of the time, although I do have my not so good days, but doesnt everyone.   As they say, what doesnt kill you makes you stronger.  Everyone has their challenges in life and these serve to strengthen us and add to the rich tapestry of life.   I think I am having a deep and meaningful day here!!!

Anyway, welcome again and look forward to hearing more about your family and maybe picking up some tips from you.

Josie - Community Champion

Thanks for the welcome Josie, I think having a deep and meaningful day is an excellent idea! You are right about the rich tapestry, never is any day the same!

I am always interested in finding out what a "typical" child would be doing at any given stage, as I have no experience of this except of course my own while growing up. My two siblings being dysfunctional! I am sure my dad has ADHD and my mum feels that she may have ASD also! SO I ask myself how come I'm "SANE"?

It is very hard though as when I do find someone, it seems that they just try to show me why they think there is nothing wrong with my set!

I am very proud of DS1 as he has a full time job working as a gardener, he has a motorbike(eeek!) which he is trying for his full licence on, so he can remove his L plates.

DS2 has made it to year 10 and looking like he will be achieving straight C grades!

Not that he is happy with that! Then we have to work out where next!

 

As for DD? Well ... I wouldn't know where to start!

Suffice to say the last 15 and a half years have taught me a lot! 

Hi Hilary,

Are you one of the wonderful mums I met this morning?

Welcome to the forum.

Asteroids Sara - Community Champion

Hi Hilary, and welcome to the community! Looking forward to hearing more about your family. : )

Hi Sara

Yes I was at that meeting this morning, I didn't get chance to say Hi!

But can I just say thank you so much for the chance you gave us all to hear of your own experiences.

I am especially grateful for the piece you said about having to say Pardon? I have often said "why do I have to say everything twice?" But now I know why and I will be able to deal with it and respond the right way.

My mum was with me as was my husband and they both found you provided some very useful information. My husband has had to retreat to bed as he doesn't cope well with that kind of situation and had to go out to the car soon after people started talking. This was the first time I have been able to involve him, I fear it may not happen again for a long while, but it was worth it for him.

So pleased it was helpful, Hilary.

You'll find lots of support here.

Asteroids Sara - Community Champion

Hi Hilary,

I have only just read this thread.. I have 2 so called 'typical' but to be honest I am not sure what typical actually means these days :) and am more than happy to update you if you like. 

As I mentioned in my other reply I also have 2 step sons on the spectrum so I have access to a bit of both. I think having both typical children and children on the spectrum it certainly highlights to me that alot of my boys 'autistic' behaviours are actually typical behaviours just extremely exaggerated.

My children ages range from- 8 Alistair step son(diagnosed as severly autistic) 10 Conran son, 13 kendal daughter and Johnathon 14 Aspergers.

 

Leanne - Community Champion

I'm glad you said about the behaviours being exaggerated as I have often said this to people when I get the "but all children do that" response.

I remember seeing somewhere that Normal is a washing machine cycle! I now tend to use the term Neuro-typical instead.

We were not sure if our daughter had Aspergers or ASD, but I was told that as she has dyslexia and other learning difficulties she can not have Aspegers. So now we are waiting for CAMHS to finalise her diagnosis, hmmm, sore subject! 

Hi

I am sure that we have had people on here whose children have had that combination of difficulties and still had a diagnosis.

I have just started reading a really cool book my Temple Grandin and she says something along the lines of if you think that your child has issues in certain areas than thats enough and don't wait for a diagnosis just start to work with your child immediately.

I personally agree with that because there seems to be so much debate as to what constiutes an Aspergers diagnosis and waiting for said diagnosis can take forever. 

Leanne - Community Champion

Hi Hilary

Yes, I find that strange too.  A friend of my daughter's has a diagnosis of Aspergers and he also has dyslexia.  He pops into the forum now and then (I'm talking about young Thomas, Leanne, I am sure you might remember him).  As far as I know it's not uncommon for someone with Aspergers to also have dyslexia, dysphasia or other similar difficulties.

Having said that I have also come across someone that was told the same as Hilary that Aspergers cant be the diagnosis when dyslexia has been diagnosed.  I wonder why they say that?  It doesnt make much sense to me.

Josie - Community Champion