Hello there!

Hello.My name is Emma and I have a 5 year old son who is autistic and a 2 year old son who isn't.

Max was diagnosed over a year ago but have had a long battle with school to get him settled and get the proper support he needs. He now has a statement and a one-to-one assistant and things are generally going much better. He has quite severe noise intolerance and when his anxiety levels are high (most of the time at school!) he will lash out and has hurt quite a few children and staff members.  

Getting the diagnosis was a big relief as we finally had an explanation for many of his seemingly odd behaviours but has been stressful getting others to understand and help.

I have joined these forums to hopefully meet other parents and share experiences and pick up any useful tips!

 Look forward to chatting with you.

 

Emma  

Hi Emma

Welcome to the forum.. does your son attend a mainstream primary school ??  

Leanne - Community Champion

Hello Emma and welcome :)

Nicky - Community Champion

Hi Emma, glad you found us! You'll definitely find some useful tips & advice here. 

How is he getting on his school, do you feel he's got good teachers and the right support there?

Hi, thanks for the welcomes!

Yes my son goes to a mainstream primary school.

They have generally been very supportive (with one or two exceptions!) and the head and Senco are great.  

We have also been very lucky with his teaching assistant as she has an autistic son herself.

Overall he is coping pretty well but last two days have been more unsettled with no real reason so always a worry we are heading back to the darker days!

Hi Emma

Welcome to the group.  My son is now 14 and in mainstream high school.   Primary school was great for him but high school has not been so good mainly due to the variances in knowledge and teaching methods of the various subject teachers.

Look forward to chatting more.

Josie - Community Champion

 Hi Emma,

Its good you have managed to get support put in for your son at such a young age...Hopefully the early input will have a really positive influence on his expierience of school....and great news that you have a supportive head and senco that is half the battle over already!!

I am Mum to 3 children with AS/ASD aged 4, 11 and 14 and have found it so supportive chatting and sharing expiriences on this forum....I'm glad you came and joined the gang and you are very welcome here :0)

Claire - Community Champion

Hi Emma

Welcome to the forum, I am mum to 2 boys, a 4 year old with ASD and a 1 year old.

My 4 year old started in mainstream primary school in September but despite his Head & Teacher/SENCO being supportive, during the process of getting his Statement of SEN done we took the decision that he really would be better suited in a specialist provision and are in the process now of trying to get him into 1. 

You mentioned your son has a noise intolerance which Dylan does to, he finds the noise levels in a class of 31 way to much and is often withdrawn or withdraws himself to the corner.  Dylan is very passive though so doesn't lash out, he just goes into himself more which is a worry.  Have you suggested to the school perhaps your son having a little space (maybe a tent) that only he can go into when the noise all gets to much for him, maybe a few sensory toys could be in it for him so he could calm himself down again before going back to the class with everyone.  Just an idea, hope it helps.

Please do ask if you have any other questions or just fancy a chat.

Tracy - Community Champion

 

Thanks Tracy

Good luck with finding the right school for your son. It is very stressful trying to get the right place isn't it?

With the noise intolerance the school have eventually acknowledged the need for Max to get away sometimes so he can go into the 'quiet room' or the dining room if the noise is too much and they have also provided him with ear defenders which he has really taken to and asks for them when things are getting noisy eg music lessons!

I have suggested the sensory toys idea but hasn't been taken up too much yet. Lots of trial and error!

Emma 

Hi Emma

One good way I've found to get things done at the school is by requesting a meeting to discuss such issues then after the meeting follow it up with a letter outlining the matters discussed, then a few months later request a meeting to discuss the progress thats been made and the things that have been implemented in those few months.  Always be polite with a smile on your face but very firm and definate about what you want and I think they find it harder not to go with your requests.

Another thing I did is when I had appts with speech therapists, OTs etc I mentioned to them the things I wanted implemented at school & they agreed and put it in their reports which then went to the school, I think schools defintely act on professionals reports more too.  Also asking the OT to go in the school to offer advice is a good idea.

Hope this helps,

Tracy - Community Champion