Where Do You Live?

 

Hi All

Thought I would start this thread so that parents/carers could try and locate other parents in their geographic locality in order to possibly meet up to chat/support each other and possibly enable our children to make new friends.

Below is a link to the Member Directory where you can pull down a list of locations, select those in your preferred travelling circle and hopefully find other members that are easily accessible.

Hope this is of help. 

Please also feel free to post on this thread your general location.  For the purposes of safety please just give your general location, eg, my location is Glasgow, Scotland.

Thanks

Josie

 

 

 Sorry forgot the link to the Member Directory:

 http://www.treehouse.org.uk/directory

Josie

Hi

Good idea Josie - It's really helpful to find local people, as services and support differ so much from area to area

BTW, I'm in Tunbridge Wells, Kent

 Nicky x

  Hi

Im in Newcastle upon tyne

 

Shelagh x

Great idea, Josie.  I've made this a "Sticky" discussion so that it will sit at the top of the Introductions section and hopefully will be easier for new members to spot. : )

 

Elena Goodrum

Community Manager
talk about autism

elena@talkaboutautism.org.uk

Hi

I live in St Albans and my son Harry who is 3 has been diagnosed with ASD.  What do I do now? 

Fiona

Hi Fiona

Welcome to the forum.

Have they defined the degree of autism that your son has?  Usually once you have a diagnosis they put in place Speech and Language Therapy and any other therapies needed.  My son was diagnosed with Aspergers when he was seven (he is now 14) and had a lot of input from the Child Psychology Department with some cognitive behavioural therapy and anger management.  He has also had a lot of input from the Child and Family Psychology Services with courses specifically tailored to help him cope with difficult situations.   I would also recommend that you read some books on autism;  anything by Tony Attwood is good and another good one is "Ten Things Your Child Wished You Knew About Autism" by Ellen Notbohm.  I know my local library had half a dozen books on Autism in stock.

You may be able to glean some helpful hints and tips from reading the posts on the other topics on the forum and, of course, you will get more replies on this thread from the other members of the group.

If you have any particular questions, just ask. 

Josie

 

 

Hi Josie

 Thanks for your message - they haven't identified where he is on the spectrum - we did think he was dyspraxic as he was very clumsy and he can not talk.  He has been having speech therapy since he was 2 3/4 and although this has helped there are still moments when we can't understand him. 

However we now think he may be aspergers.  We had someone come from the autism team but they spent 20 minutes with us and did not really say how they are going to help him?

We are not really sure what to do as I hoped the autism team would help but I eally dont know what to do now - may be I should raed up on some of the books you suggested.

What kind of help should we get for Harry?  He is due to start school in September and will only just be four and still in nappies.

Is there anything that you could suggest that we do now?

Thanks

Fiona

 

Hi Fiona,

My son is 4 on Tues and still in nappies too. I spoke to a lady from the incontinence team (contacted through school nurse or health visitor) She gave me some really good ideas about toilet training with children with ASD. It is worth a try. Have you got an Autism support group in your area? The local council should be able to tell you if you're not sure. Also, if your son is orally dyspraxic (trouble saying speech sounds) blowing bubbles, using straws for drinks, playing blow football, licking stuff off lips etc anything that is fun and gets the lips/jaw/tongue/teeth moving is excellent. 5 mins 3-4 times a week is better than 1 lot of half an hour per week.

As for finding out about ASD, I totally agree with Josie that reading anything written by Tony Attwood is a great idea. I saw him talk a few months ago and he is so knowledgeable. Good luck and keep in touch.

Claire 

 

Hi Fiona

 Why dont you try going back to your GP and asking for a referral to your local Child Psychology Clinic.  They do several different therapies and can assess for other referrals (at least that's how it worked for me).

Is he going to mainstream school or a specialist one?  If it is mainstream, he will need a statement of his needs put in place and probably a one to one support teacher, but the school should organise this (in an ideal world).  I am in Scotland so things are slightly different up here.

If his diagnosis is Aspergers there is a brilliant book by Brenda Boyd called "Parenting a Child with Aspergers Syndrome";  this one was my Autism Bible and it was one of the ones in my local library so I just kept booking it out again!!

There is also an excellent document that Tony Attwood prepared for the Scottish Education System, but it is full of great stuff about educating autistic children;  its called "Autism Toolbox" and is on the net.  It is a very large document (in excess of 200 pages) but worth checking out.

Feel free to ask any questions and keep us informed of your progress.  If you are on facebook feel free to add me.

Josie

Dear Fiona,

Just to add to Josie's comment, there are Early Support Materials which were commissioned by the Department for Health and written by the National Autistic Society and TreeHouse (http://www.earlysupport.org.uk/modResourcesLibrary/StreamRenderer/Autist...) - you find them useful. Their whole site is quite useful and has some great links to other sites too: http://www.earlysupport.org.uk/.

I hope this is of some help.

Kind regards

Anna