Casein and Gluten free diets - anyone swear by these ?
Posted by
Elena - former Community Manager
on 27th January 2010
at 09:30
I've heard many success stories! I think it's definitely worth a try... Everyone is different and you may find that it does really help.
I have a few good resources for GF, not so much the CF, but am happy to share what I've got and put you in touch with a friend (via Facebook or Twitter) who is very knowledgeable about GF-CF. Let me know! ...Didn't want to bombard you if you've already got some resources. :-)
Posted by
Elena - former Community Manager
on 27th January 2010
at 12:37
This woman, Liz, circulates a lot of information about GF specifically but also CF and lots of other dietary information.You can find her email, Facebook and writing here: http://lizschau.com/connect/ And here's her Twitter:http://twitter.com/lejeal
I believe that her mother works with people with autism so she may have access to resources which could really help.
Also, these sites aren't strictly GFCF but you'll find some yummy recipes here:
Elana's Pantry (check out her "About" page for why she's eating the way she is)
And oh dear, looks like Can Eat is down at the moment. Hopefully back up soon!
Also, we've got a discussion about toilet training right here:
http://www.treehouse.org.uk/forums/autism/general-autism/1377
:-)
Posted by
Leanne
on 27th January 2010
at 15:27
Hi
I have an 8yr old step son diagnosed as severly autistic at 3.5.
We tried the gluten and cassein free diet for a while but didnt really see any diffference. I know that for some people it has worked.
There is something called the 'Sunderland Protocol ' drawn up by Sunderland University which gives a guidelines/timelines for people wishing to try alternatives treatments etc I found it very interesting and worth a read I could find the link if you are interested.
My son also has limited vocab and also used the baby bumblebee dvds.. I recently found that he responds really well to subtitles on anything he is watching, I would recommend doing this for your son when he watches tv even for cartoons etc.
When he first came to live with me - almost aged 5 - he was uncontrolable, would scream if he didnt get his own way and would not tolerate the word No. he was also in nappies day and night and only ate dry cereal , tortilla chips, popcorn and copious amounts of soya milk. he never sat at a table.All of that has now changed.
He now sits with his siblings for all meals, feeds himself ,eats whatever is put in front of him .He still gets frustrated and can lash out but the more verbal he gets the fewer his outbursts are.His outbursts are saved for school usually - he knows better than to try with me :) He responds to my voice and facial expressions and doesnt like being told off.
He has definately improved due to a huge amount of work from him but essentially myself and his dad getting control back from him.He had an amazing amount of control and influence for a 5 yr old- I am so pleased we did it then as I am not sure it would have worked if he had been older and stronger !!
I am happy to swap ideas etc or just to chat ... welcome to Treehouse :)
Leanne - Community Champion
Posted by
Leanne
on 29th January 2010
at 11:27
Hi
I forgot to mention that shortly after Alistair came to the UK we started giving him 'good bacteria' tablets to help his tummy. He used to have awful diahorhea.. whether its the tablets , the change in diet or something else but his tummy got better and his eye contact improved hugely.
About a year after we started him on the tablets we started giving him Glutathione Pleolyposome drops- after a friend recommended it - again cant say for sure whether its the drops but his concentrtaion and general engagement with the world changed hugely and when he doesnt have his drops he can be a little more agitated not hugely but a bit.
We get them shipped in from the US.
Regarding eye contact I learnt very early on that if he didnt want to hear something I was saying he wouldnt look at me.. I would hold his face and make him look at me. When he is being told off now a majority of the time I am saying 'Alistair look at me' because he will look away.I suppose thats connected to him being a visual learner.
Leanne - Community Champion
Posted by
Sanhita Chakrabarti
on 29th January 2010
at 12:47
Hi,
My Daughter is 5 and was diagnosed to be on the ASD spectrum at age 2. She was lethargic and could never concentrate onanything. Her pre-school aleways complained that she was falling asleep several times during the day and it wsa very hard to enagage her in anything.
We were recommended Gluten Free , Lactose free diet for her which worked miracles. Within about 8 weeks we saw a huge difference as if she was a different child altogether. Her pre-school noticed the different as well.
Our paediatrician didn't believe this and asked us to challenge her with Gluten to see whether her symptoms of lethargy and aggression come back. We did this and she went back to her original lethargic aggressive self. Again, everybody around her noticed her sudden difference.
Since then we keep her off Gluten and Lactose. She has blossomed into a lovely little girl and her attention span is getting better. She is still non-verbal but her words are coming through now.
She doesn't miss out on anything that her brother (normal) can have. Most Supermarkets have a wide variety of food in their 'free from' ranges starting from Fish Fingers to Pizza bases which are Gluten and lactose free.
I hope this helps. It helped us a lot.
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Posted by
uttleya
on 27th January 2010
at 08:36
I have a 4 and a half year old son with moderately severe autism and global development delay
We havent always been as strict at following this as we perhaps should
Does anybody have an opinion on this - any success stories?