Respite care / support
Posted by
Josie Barnshaw
on 3rd October 2009
at 22:21
Hi Leanne
I dont know if you spotted the forum for posting any respite, support and carer groups that I posted a few weeks ago. Some of the categories maybe dont have any info yet but there is a whole range of threads for groups from respite, to dads, siblings, carer groups, toddler groups etc. Some of them have links that I found on the web and links that the others have added for groups that they have some knowledge of.
I am sure we discussed the different therapies and courses our kids have had as well somewhere but I cant remember where ;) My son has had a couple of Anger Management courses (when he was 7 and again at about 11), CBT and a SNAP course (Stop Now and Plan) to help him cope with difficult situations (peer pressure mostly). The SNAP one had a parent one running in tandem where we, the parents, were given some advice on the "no", " be careful" and different everyday expressions that parents tend to use that cause confusion for our kids, use of charts, rewards, "routine" schedules etc (this therapy was through CAMHS and I know we have a thread about CAMHS so there's probably more from others in that thread).
Up at the top right corner of the screen there is a search box. If you just type in a word, eg, respite, or CAMHS whatever it is you want to see if there is any info on and it will bring up a list of the posts containing that word. I only found this out recently myself and it has been a Godsend as my memory is atrocious!!! Hope it helps!!
Here's a link to the Group thread if you know of any more, add away:)
http://www.treehouse.org.uk/forums/autism/support-and-campaigning-groups
There's a thread about benefits as well somewhere and DLA and travel passes, CEA cinema passes etc.
Josie - Community Champion





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Posted by
Leanne
on 3rd October 2009
at 16:09
Hi
Wanted to start a disucssion regarding any respite care or support people get.
Just to make sure everyone knows whats on offer and are accessing as much support as they can possibly get.