I haven't seen the advert (through choice because I know it will make me very angry). The extract above is enough to upset me. How are we supposed to encourage greater awareness and inclusion if this is what people believe?
Asteroids Sara - Community Champion
Posted by TomGray
on 6th October 2009
at 05:47
I'm considering asking my group members to email the fan clubs of some of the celebs that fundraise for Autism Speaks and ask them to rethink what they are doing. Someone sent me a message last night to say that Autism Speaks recently sued a 14 year old girl for posting videos under the heading NT speaks. It was a parody of Autism Speaks, but they successfully argued that they had lost income due to this. I can't verify this story - but I am trying.
I don't want to use up too much time on this lot, but hopefully stuff like this will just make us stronger and more determined to spread the truth about autism.
Rant over - phew!
Posted by Josie Barnshaw
on 6th October 2009
at 15:56
Hi Tom
Yes, I agree with you about the video "I am Autism". I also found it very negative. Yes, most of the points are true for some but not all the points for everyone. I think it would be a very scary thing for someone with either a new diagnosis or the parent of a child newly diagnosed.
I know that when it first came out there was a lot of outrage about it and as far as I am aware the sponsors have already been petitioned re withdrawing from sponsorship of Autism Speaks. I dont think the video has had much airtime; certainly not on facebooks that I can see. Apart from the one post from one of my fb friends when it first came out I have not had it posted again and I have a fair few fb autie friends.
Hope you are all well in the Valleys!
Josie - CommunityChampion
Posted by Hughesdepayens
on 7th October 2009
at 01:51
Claire.
Keep going and don't give up, it took us best part of 18 months to get adequate schooling for our son, and my wife is a hoarder of information on all of our kids, so I had plenty of ammo to use, I threatened with the tribunal, but sat in a meeting with the teachers and explained to them on numerous occassions where the failings were and the dates are being logged, funny enough I was told no need for tribunal and we got what we wanted.
Its just a shame everything is such an uphill struggle to get what every child is alledgedly guaranteed which is a decent education for everyone, it doesn't say anywhere that there is only way of educating a child
Veritas Vos Liberabit
Posted by georgie
on 13th October 2009
at 14:16
Oh my goodness have just watched the video -could hardly believe it -where do you start with something that is so offensive !!!! am speechless
Posted by Hughesdepayens
on 13th October 2009
at 22:44
Ah yes the Autism speaks video apprently directed by the same bloke who directed Harry Potter, yes it is offensive, yes it does paint a grim picture, I would not be how I would have described Autism, but this person has not had his life touched by Autism, and has little understanding of it, its the same as when you tell someone who doesn't know anything about Autism the first thing they mention is Rain Man, not anything about how it affects the lives of the individual or the families around them. I find it hard to find any positives on Autism, if there are any, but the Autism speaks advert certainly over-egged the cake, if this is the advert imagine how the money is being spent?
Ill researched and ill advised, it should have been presented totally differently, the way it was prevented has pretty much put people with Autism at a disadvantage and described them like lepers,
Veritas Vos Liberabit
Posted by Leanne
on 19th October 2009
at 15:24
Hi
Am not happy today.. just got over the most horrible cold and have managed to do my back in making the bed. So not fair !!
Leanne - Community Champion
Posted by bumblebee
on 19th October 2009
at 15:30
Hi Leanne.....I hope you are feeling better soon.....maybe you need a bit of a rest but easier said than done eh?!
Claire - Community Champion
Posted by Snowdrop
on 19th October 2009
at 16:17
Hope the back is better soon Leanne, think you must have passed the cold germs to me over the forum as me, Glenn & the kids all have stinking colds at the moment! Calpol & Nurofen are friends in the Beadle household at the moment!
Tracy - Community Champion
Posted by Leanne
on 19th October 2009
at 17:11
Well... not wishing to pass the buck but am sure Nicky was the first one with the cold on here.. secretly I was blaming her!!!
Olbas oil was my best friend.. cant say that the rest of the family were as keen though!
Hope you feel better soon.. it took a good week or so for mine to go.
![SiftGroups.com [opens in a new window]](sites/www.talkaboutautism.org.uk/themes/zen/treehouse/images/siftGroupsLogo.gif)
Posted by
asteroids
on 5th October 2009
at 22:49
I haven't seen the advert (through choice because I know it will make me very angry). The extract above is enough to upset me. How are we supposed to encourage greater awareness and inclusion if this is what people believe?
Asteroids Sara - Community Champion
Posted by
TomGray
on 6th October 2009
at 05:47
I'm considering asking my group members to email the fan clubs of some of the celebs that fundraise for Autism Speaks and ask them to rethink what they are doing. Someone sent me a message last night to say that Autism Speaks recently sued a 14 year old girl for posting videos under the heading NT speaks. It was a parody of Autism Speaks, but they successfully argued that they had lost income due to this. I can't verify this story - but I am trying.
I don't want to use up too much time on this lot, but hopefully stuff like this will just make us stronger and more determined to spread the truth about autism.
Rant over - phew!
Posted by
Josie Barnshaw
on 6th October 2009
at 15:56
Hi Tom
Yes, I agree with you about the video "I am Autism". I also found it very negative. Yes, most of the points are true for some but not all the points for everyone. I think it would be a very scary thing for someone with either a new diagnosis or the parent of a child newly diagnosed.
I know that when it first came out there was a lot of outrage about it and as far as I am aware the sponsors have already been petitioned re withdrawing from sponsorship of Autism Speaks. I dont think the video has had much airtime; certainly not on facebooks that I can see. Apart from the one post from one of my fb friends when it first came out I have not had it posted again and I have a fair few fb autie friends.
Hope you are all well in the Valleys!
Josie - Community Champion
Posted by
Hughesdepayens
on 7th October 2009
at 01:51
Claire.
Keep going and don't give up, it took us best part of 18 months to get adequate schooling for our son, and my wife is a hoarder of information on all of our kids, so I had plenty of ammo to use, I threatened with the tribunal, but sat in a meeting with the teachers and explained to them on numerous occassions where the failings were and the dates are being logged, funny enough I was told no need for tribunal and we got what we wanted.
Its just a shame everything is such an uphill struggle to get what every child is alledgedly guaranteed which is a decent education for everyone, it doesn't say anywhere that there is only way of educating a child
Veritas Vos Liberabit
Posted by
georgie
on 13th October 2009
at 14:16
Oh my goodness have just watched the video -could hardly believe it -where do you start with something that is so offensive !!!! am speechless
Posted by
Hughesdepayens
on 13th October 2009
at 22:44
Ah yes the Autism speaks video apprently directed by the same bloke who directed Harry Potter, yes it is offensive, yes it does paint a grim picture, I would not be how I would have described Autism, but this person has not had his life touched by Autism, and has little understanding of it, its the same as when you tell someone who doesn't know anything about Autism the first thing they mention is Rain Man, not anything about how it affects the lives of the individual or the families around them. I find it hard to find any positives on Autism, if there are any, but the Autism speaks advert certainly over-egged the cake, if this is the advert imagine how the money is being spent?
Ill researched and ill advised, it should have been presented totally differently, the way it was prevented has pretty much put people with Autism at a disadvantage and described them like lepers,
Veritas Vos Liberabit
Posted by
Leanne
on 19th October 2009
at 15:24
Hi
Am not happy today.. just got over the most horrible cold and have managed to do my back in making the bed. So not fair !!
Leanne - Community Champion
Posted by
bumblebee
on 19th October 2009
at 15:30
Hi Leanne.....I hope you are feeling better soon.....maybe you need a bit of a rest but easier said than done eh?!
Claire - Community Champion
Posted by
Snowdrop
on 19th October 2009
at 16:17
Hope the back is better soon Leanne, think you must have passed the cold germs to me over the forum as me, Glenn & the kids all have stinking colds at the moment! Calpol & Nurofen are friends in the Beadle household at the moment!
Tracy - Community Champion
Posted by
Leanne
on 19th October 2009
at 17:11
Well... not wishing to pass the buck but am sure Nicky was the first one with the cold on here.. secretly I was blaming her!!!
Olbas oil was my best friend.. cant say that the rest of the family were as keen though!
Hope you feel better soon.. it took a good week or so for mine to go.
Take care
Leanne - Community Champion