DLA Mobility & Badge

Hi All

I have a cousin who has a son on the spectrum who has just got a brand new car paid for by Disability, mobility.  Her son attends mainstream school and is fairly high functioning.

When I applied for DLA for Dylan last year, they told me I couldn't get mobility for him until he was 5 and also he would have to have difficulties with mobility etc.

I was just wondering do families with kids who have autism get the mobility part of DLA and then does that mean you get a disabled badge for parking etc?  And do you have to get the mobility part of DLA to get a badge or can you have 1 without the other.

I doubt we would qualify for the mobility part of DLA with Dylan but a badge for carparks etc would be really helpful as he has absolutely no sense of road safety etc so if we are in a big car park and far away from the shops etc, it can be a bit of a nightmare walking to where we need to go.  His also going through a phase at the moment where he is not happy to walk holding my hand or onto Jakes buggy, I'm really strict and make him hold on to 1 of them but sometimes he is really resisting and I'm finding myself pushing Jakes buggy and having to almost drag Dylan across a car park when we're trying to get somewhere, does anyone else have experience of trying to get mobility DLA or a badge?

Tracy - Community Champion

Hi Tracy

Well, all I know about this is that you need to get the high rate mobility to be able to exchange the money for the car. I have heard just recently that they are clamping down on the blue badges and it is really difficult to get one; as far as I know you have to be virtually unable to walk to get one. It's apparently based on how far you can physically walk before you are in pain/discomfort.

Having said that, just like DLA, you wont know if you dont apply and appeal and fight ..... nothing new there, eh!!!

You know I met a couple just last week that I used to live beside about 30 years ago and back then they were a young couple with two kids, she was claiming to be a single parent, with severe back pain making her unable to work and on invalidity - he was working as a bus driver .... she could go out and do heavy gardening, carry shopping, move furniture etc ... and I was disgusted when I met them the other day driving a fancy big black four wheel vehicle .... and yes, with a disability badge. Oh and since I moved away they had also had another child! This is really all wrong, the people who need these kinds of support dont get it or have to fight really hard to get it and those that know how to play the system have no trouble accessing it. If as much time and effort was spent dealing with the fraudulent claims as they do fighting legitimate ones there would be more money to support those that needed it.

RANT OVER :)

Josie - Community Champion

Hi Tracy,

I think you keep forgetting where you live!! No chance of getting a badge without the higher rate of mobility...when Hollie was in hospital I had 3 children who needed 1-1 and I asked for even a temporary badge as the hospital insisted I take Hollie out with the other 2 on my own.....I even showed the councillor who came to our family for the walk in their shoes that I needed some help in this area...nothing!

You can only get the lower rate mobility for Dylan (unless you feel he meets the criteria for higher rate) and you can only get that after he is 5....the higher rate is available before age 5, but it is such a high benchmark and usually children with autism who get the higher rate either have severe behaviour problems or are profoundly autistic....my friend has 2 badges for her 2 sons who have autism but one also has epilepsy and is profoundly autistic and the other has classic autism and a heart problem.....I'm not sure that Dylan would qualify to be honest, but up to you if you think he does meet the criteria and needs this help...

Claire - Community Champion

Hi Tracy,
I only get the lower rate for Alistair and I expressed the same concerns as you.. what did your cousin put on her form to get the badge ??
Leanne - Community Champion

Hi All
To be honest it didn't even occur to me that Dylan would qualify for the mobility rate of DLA, it was just when I heard about my cousin I wondered how on earth she had got a new car. Its the badge that I would find really helpful, somedays Dylan is great and will walk fine alongside me holding on but if he's not in the mood too or we have a bad trip out somewhere, then its such a struggle to either pick him up or almost drag him along whilst having Jake too.
I haven't spoken to my cousin for a few years, I only normally see her at weddings etc, it was her mum who told my dad about it, he did offer to give me her no. for a chat so perhaps I'll give her a call to find out, I'll let you all know what she says.

Tracy - Community Champion

Hi
I think the reason Alistair got the lower rate awarded is purely because he cannot go out on his own because of his language difficulties and the fact that he cannot understand road safety and is exceptionally vunerable with regards to strangers..
Leanne - Community Champion

Hi Leanne
Yep, I would agree these would be the reasons that I would apply for Dylan, I will give my cousin a call and see why she gets the higher rate. Dylan turns 5 next month so I can apply for mobility next month and see how I get on.

Tracy - Community Champion

Hi Tracy,

You should get your DLA renewal pack for Dylan soon for when he turns 5...I am pretty sure he will qualify for the lower rate and that you will get this easily because of the issues you mentioned and because of his language difficulties....to reach the bench mark for the higher rate though, his difficulties really should extend to him not being able to walk or an additional medical problem etc... There is a form you can ask for from the council for a blue badge and you can send it in with an additional medical opinion to support it without having the higher rate mobility, but this is still very hard to get and even though I did this and had the Paediatricians backing with the form, they still said no....It seems like there are some people getting higher rate mobility when others in similar if not worse situations aren't....it certainly doesnt seem like its a fair system and I am pretty sure that there were new recommendations for children with autism and DLA a while ago....these may be worth looking into.

You could try asking the council for a blue badge form to fill in and then asking if the Paediatrician will support your application? I'd check that they are still allowing this to happen though because like Josie said, they are really tightening the criteria....

Claire - Community Champion

Hi Tracy

One of the parents at TreeHouse was able to get a car via the Motability scheme, to which anyone receiving higher rate mobility component of the DLA is entitled. (http://www.motability.co.uk/main.cfm)

Her son was receiving DLA upper rate Care component but only the lower rate Mobility component. She asked for reassessment for higher rate mobility component and got turned down.

She appealed and the Tribunal upheld her son's entitlement to higher rate mobility (she said that the NAS helpline had some very useful information about how to present a case. She had to demonstrate ‘severe mental impairment’ according to a set of strict criteria. A local voluntary organisation also offered help and advice about how to word the form.)

Once the DLA tribunal judgement in favour of high rate mobility component came through, she contacted Motability who have very accessible information about how to lease a car with them. The mobility component of her son's DLA goes straight to Motability, from whom she has leased a car for 3 years. Motability organise everything – the insurance, registration, AA membership, pay for the servicing etc etc from this payment.

She did have to make a downpayment on the car and this will vary depending on the make and model of car. She said that has been really straightforward and she commented that other parents she knows have got new cars via the motability scheme all find it really excellent.

Anyway, I hope this information helps - it seems like Motobility might be the peopel to get in touch with to find out more.

Thanks!

Anna

TreeHouse Staff

The lower rate mobility DLA is for if your child needs more supervision than another child their age on unfamiliar routes outside.

The higher rate is either if you are
- unable to walk or virtually unable to walk (ie: you can only walk with severe discomfort or the speed and distance you travel is such that you are deemed virtually unable to walk)
- or have severe mental impairment plus severe challenging behaviour AND are receiving the higher rate care component.

It is possible to get it if your child can walk but unless there is a physical problem which makes them virtually unable to walk they will have to be receiving the higher rate care component and have severe mental impairment and challenging behaviour. Both cerebra and NAS have useful information and there is also some useful caselaw on it if you google.

As for the blue badge it does depend on local authority. You can automatically receive it if you are receiving higher rate mobility DLA or if you are registered blind. You can apply otherwise but your local authority will make checks on your ability to walk. In Hampshire they write to the GP, in some areas they ask you to attend a medical - some areas are much stricter than others.

HTH

Carol

Thanks for all the advice all, lets see how I get on!!

Tracy - Community Champion