Debate Corner
Posted by
damo73
on 22nd July 2010
at 12:51
Okay...
The first issue that I thought of discussing regards how people view autism (following on from recent debates on the forum), and the consequences of this.
So is autism a 'disorder' or part of 'diversity' (different but equal)?
Once this has been discussed for a while, this can lead on to:
Can autism change? e.g. can 'symptoms' be allieviated? Is this possible without reducing 'strengths'? Is it even possible? Also, why would you want to (if you do want to)?
You can find some of my opinions regarding these issues in my recent debate about RDI, so I will leave this open to others to comment for a while.
I hope we can all learn from each other in this process...
So - disorder or difference? Discuss...!
Damian - Community Champion
Posted by
Elena - former Community Manager
on 22nd July 2010
at 14:11
Good topic, Damian!
And for those wondering where to find the RDI discussion that he mentioned, it's right here:
Posted by
Josie Barnshaw
on 22nd July 2010
at 19:06
Hi Damian
I would definitely favour the "diversity" option; I have always described Tom as being differently abled, especially when others try to say he is disabled or has a mental impairment, neither of which I think applies to him. I also believe we are all differently-abled and it's a case of finding a way to see all our differences in a positive light (although that can be really hard at times).
Loved the Kurt Cobain quoted from the RDI thread.
"So - I think I have an 'extreme' personality and many weaknesses (holes if you like), yet I can do things that very few people I meet can do. Thus, I can't accept a self-label of 'disordered' and having all deficit and no positive - this is just not my experience."
Picked up the above quote from one of your posts on the RDI thread as well and I can see that applying to just about everybody I know (including myself)!!
Josie - Community Champion
Posted by
damo73
on 22nd July 2010
at 20:01
Hello Josie,
My strengths feel very unusual at times - to the point where others can't comprehend or even notice them (although they are there as they have observable effects). What would you say your strengths were? I find a lot of NT's take some strengths for granted as they think everyone else has them (they don't!). An aspie friend of mine helped me to finish the 'birds of a feather' line - he said 'Birds of a feather flock together, unless they are an Eagle'. He thinks everyone is disabled - in the sense that unless you are no.1. in the world at something, you are less abled than someone else - and nobody is no.1. at everything. Interesting perspective!
Damian - Community Champion
Posted by
Josie Barnshaw
on 22nd July 2010
at 23:01
Hi Damian
I believe everyone has strengths and like I think you are also saying, they are all different and yes, we do take them for granted most of the time. I havent really given much thought to what my strengths are, but I do know we all have strengths and weaknesses and I believe that if we all work together we can share our strengths and work on the weaknesses; of course as your friend has already said we will never quite reach perfection but to continually work in that direction can only be good.
Now ... what are my strengths .... well then touching on our discussion on opinions yesterday, while I do have opinions I am definitely open to reconsidering them in the light of new information or possibilities. When I think about what I have just said I am also seeing a possible weakness in not having the courage of my convictions (here's my messy thinking coming out now!!!). I am fortunately generally a very calm person (although I have been known to have some pretty stressful moments) but in general I am not easily phased. I am definitely not a worrier; if I cant source a solution to a problem there aint no point in worrying about it!!
Before you ask, the weaknesses .... well, as you may have gathered, I can be quite a soft touch where the kids are concerned, but not beyond reason, just perhaps a little more than some folk would advise. I am also told that I let other people take advantage of my good nature, but that's their problem and not mine ... I think??
Tom has said on more than one occasion that it is we NT people that have the problems and that if the world was full of people on the spectrum it would be a much better place ....... and I am definitely leaning towards agreeing with him!!!
Josie - Community Champion
Posted by
damo73
on 23rd July 2010
at 00:15
Hello Josie,
I agree about the working together thing - the problem is recognising abilities that one doesn't hold oneself in other people - if one can't do something than it is impossible to be empahetic about it. Being able to recognise difference is very important I think. One may not be able to imitate the other, but one can build an appreciation of at least the end product and be in awe of the process etc.
My friend would relate about making improvements - one of his favourite sayings about table tennis is that his favourite shot is his weakest one!
Open-mindedness can be a strength and a weakness (most things are in human nature!) - yet I think one can train to have better courage of one's convictions. Luckily I have both (yet may be rare?) - my mother is quite like you in this respect. Sometimes having a good sounding board with a blunt perspective helps in this regard - e.g. 'of course you are right' or 'I don't think so...' - maybe Tom will provide this for you, as I have done for my mother (lol!)?
The Roman philosopher Seneca once said that one should not ever worry about catastrophe that is beyond one's control - if you could not prevent something, there is no point worrying etc. - it is simply an illogical connection between personal agency and events. In other words however - the thing we should worry about is our actions! Mmm...I wonder if he would have been diagnosed if around today (lol!)?
I am often told that people take advantage of my good nature - yet I am autonomous - I don't have to do what I do (although some philosophers would disagree!). Yes - if people take advantage, I see that more as their problem.
If the world was full of autistics what would it look like? You would probably still get tribal divisions - you would have the 'Vulcans' (society based on logic), peaceful anarchists, not so peaceful anarchists, possibly a few dictatorships (yet they wouldn't last long with all the revolutions) - in a way, politics would be pushed to extremes...not sure if this would be better? Maybe there is a functional evolutionary reason for our existence, but also another for our sparcity in numbers? Then again, I remember watching the opening ceremony of the Beijing Olympics and thinking 'see - when aspies organise things...' (lol!). Then I realised it was also the stack of money they threw at it. Then again - when British politicians throw money at things...
It is certainly an interesting hypothetical!
Debating is quite different when I largely agree with someone!
Damian - Community Champion
Posted by
Snowdrop
on 23rd July 2010
at 21:01
Hello
I actually think autism is a disability, when I see how it affects Dylan I absolutely think it is a disability that is going to impact him for the rest of his life. This doesn't mean I think people with autism or any other disability for that matter are any less equal to people without a disability and they certainly shouldn't be treated badly because of it, I think people should be accepting and understanding of all people regardless of whether they have a disability or not.
I can understand how people as high functioning as yourself Damian may find it offensive for me to say you are disabled but equally when you mention how certain things affect you or have affected your life, then surely you must consider that you have a disability? Also, what about people with classic autism who are always non-verbal, never ever come out of their own world, need constant care for their whole lives, do you really consider these people who have autism not to have a disability?
I also remember when there was a discussion on this forum when someone mentioned that she was offended by the term ASD because she felt it belittled her own sons diagnosis of Autism and that she felt people with autism were so much more badly affected in life by their condition then say someone suffering with aspergers. I remember you were 1 of the people who responded who didn't agree with her and who stated how affected yours and other peoples lives with aspergers are and what a raw deal as such you have, even though there are many positives, do they really outweigh the negatives?
Thought this post might get you back to feeling more comfortable debating with someone you don't agree with LOL, by the way I hope I haven't offended you. I would like to say that even though I consider Dylan to have a disability, I absolutely love him to bits and have always found him a complete joy, I don't intend to bring him up constantly telling him he is disabled and should feel sorry for himself, I would like to bring him up knowing about his autism, knowing the many positives but ensuring we teach him coping strategies and offer him all the support he needs to lead a fulfilling life.
Tracy - Community Champion
Posted by
damo73
on 24th July 2010
at 01:32
Thanks for joining the debate Tracy,
You say that autism is a disability - yet what would you define a disability to be? Compared to normal? This is a hypothetical construct ('normal' that is). Compared to what someone would be without autism (this is illogical - they do have autism...etc.). This in itself is a tricky one...so when in doubt - look in dictionary (p.s. Claire - so glad that Jack likes dictionaries - a good thing to get into!):
Disability - thing that disables or disqualifies.
Ability - power or capacity (to do), cleverness, talent.
Qualify - make or become competent, fit, eligible.
The 'medical model' of disability looks at pahologies as compared to the statistical average (as a measure), they say that everyone who is 'normal' fall under majority parameters. Thus anyone outside these parameters has at least a 'deviance' or 'abnormality'. These are often also treated as pathological and dysfunctional (for rather more complex historical reasons). Thus the idea here is to 'cure' or 'rehabilitate' the deviant into a state of normality - or help them reach as close to it as possible (yet remain with a feeling of inadequacy for not being able to).
In this view, autism is a pathology - a deviant abnormality that disables people - it is incurable - therefore people will never quite reach 'normality', yet we can give them an ultimately unfulfilling life by setting a goal that it is known they cannot reach (an NT standard set by NT people!).
However, I have no intention of being 'average' (lol!). The 'social model' of disability suggests that it is society that disables - both in its material existence (e.g. ramps, doors) + and attitudes (you must be an 'enthusiastic team player' to get a job etc.).
In the latter sense - yes - society does disable me (it is an NT dominated one, set up for the interests of NT people) - yes, some of this is inevitable, yet I will fight injustices anyway (lol!). You say that 'we' should not be treated any less 'equal' (yet equality is a very vague concept) - in terms of 'rights' and 'laws'?
Things have affected me - I am hyper-sensitive 'compared' to most other people (seem to be) - this brings advantages as well as disadvantages. I have an eye for detail and am good at focusing - yet when I do - I miss what else is going on. etc. - really - I don't see myself as disabled in the medical sense (nor do the government in terms of benefits - in a social or medical sense!).
May I correct you on some points about 'classic autism' - the idea of 'never come out of their own worlds' is an NT description and not very accurate (from my view). In my philosophy, we are all locked into our own perceptual worlds, yet NT's often hold the delusion that they can understand others perceptions through communication (and don't often realise that all communication attempts are faulty or reductionist / symbolic in nature) - in many ways language is quite poor at getting a message across (and quite good at excluding people - e.g. the 'in' joke). In terms of communication and interaction - my son for instance - does so quite a lot and is socially minded (just in a different way) - NT's often assume that verbal ability = awareness of others - this is not the case.
You say they need 'constant care' - one could argue that we all do as social beings - something overlooked with NT's - new parents be warned - NT children will need support for life too!
Do I not see them as 'disabled' - not in the medical sense - in the social sense - absolutely! In a capitalist society where social worth and value is measured by productivity and profit making - than yes, people like my son will always be socially disabled in this society.
One is made to be socially 'ineligible' and 'incompetent' - this need not always be so in every social context. In short - society disables autistic people a great deal more than the autistic 'symptoms' do (many on the spectrum would disagree - yet I would argue that many arguments used have a basis in social realities). The 'raw deal' I got was from society - not autism!
Do the positives outweigh the negatives - yes! Although I have had some very hard times - I like being alive (I think Nye does too). Yes - there have been times when I questioned this, yet not anymore (Nye helps me in this respect). The things that have got me down have always come from an external source. My mind on the other hand is my greatest asset, it is 'me', without it - I would not be me (I'd be dead - lol!).
I think most of us will be able to agree on social difficulties and prejudices - yet what is your view on the 'medical' model? What would you compare the 'disabled' with the 'abled' - and does this not assume a level of 'better than' and 'inequality'?
Josie - what do you think? Also - how would you respond to Tracy?
Damian - Community Champion
Posted by
Leanne
on 24th July 2010
at 09:33
Hi Damian,
As I have been awake since 5 am and it is still too early to hoover I thought I would chip in..
I see both of my boys as being disabled and differently abled.
Alistairs delayed language is a disability .. it has prevented him accessing mainstream education which is already putting him at a disadvantage educationally. He will not progress along the same educational route and even when he becomes verbal he will be so far behind. I firmly believe that the differently abled part of him will enable him to learn what he needs to to catch up. I feel he will struggle with relationships but believe it is something he can and will learn. Society has not caused these issues, his inability to talk is an issue within Alistair and something which he is working very hard to overcome. I agree that you don't have to talk to be able to communicate, just because he couldn't talk did not mean he was dumb - far from it.
Johnathons aspergers is also a disability making it so much harder for him to cope on a social and emotional level but the differently abled part of him enables him to learn quickly and will hopefully enable him to get a fantastic career.. he will find relationships a struggle and may feel that he never really fits in.Would this be different if the whole world was autistic .. no I don't think it would. He doesn't understand his brother better than the rest of us, if anything it is worse.
I think blaming society is not helpful and always looking for others to make situations better doesn't help. Making things someone elses problem means that you don't take ownership of a situation and only by taking ownership can you have some sort of independance.
You commented about being an 'enthusiastic team player' to get a job.. some jobs you need to be ,some you don't. So some careers you will be suited to , some you wont -isn't that the same for everyone. Just because you want to do something doesn't mean you have a right to.
I have to disagree that NT children need support for life. I was an NT child and my parents do not support me, neither financially nor emotionally and haven't since I moved out at 18.
Leanne - Community Champion
Posted by
Josie Barnshaw
on 24th July 2010
at 10:10
Hi Damian and Tracy
I dont use the word "disabled" to describe Tom because I dont see him as disabled; I have had to explain that he is autistic but |I would never say disabled.
Having said all that I think the word "disability" can be subjective. My ex-husband who has Aspergers calls himself "disabled" even though he is a very intelligent and capable person and he does this because to him the word autism equates with disability; I think that is wrong! You only have to look at the myriad of people on the spectrum who are high achievers and the contributions they have made to society; people like Temple Grandin. I am now thinking about Steven Hawking (dont know if he is autistic) who would understandably be classed as "disabled" simply because he is in a wheelchair, cant walk and cant speak unaided, but look at just how mentally alert and brilliant the man is .... a better description for him would be physically challenged; he certainly doesnt seem to be challenged in any other way!!
I think the word "disabled" isnt a useful one; it's one of these words that needs further clarification as to the actual condition that warrants the term "disability" ... so why use it??
That's just my tuppence worth!!
Josie - Community Champion



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Posted by
Elena - former Community Manager
on 22nd July 2010
at 12:23
Welcome to the Debate Corner!
In this discussion, we would like to hold friendly, respectful debates on some of the issues pertaining to autism.
If you're one of those people who don't really like getting into debates (like me) then you are welcome to just read the discussion, or you can start a new discussion elsewhere in order to discuss the topic without debating it.
We have had some really excellent debates here at Talk about Autism, and have been very fortunate to have such considerate members who work very hard to keep debates nice and friendly. I can't thank you all enough for being so kind to each other, even when it's obvious you fundamentally disagree with someone!
How the debates will work:
Damian will be looking after Debate Corner, and from time to time he will be giving us a new topic to debate. After he posts a topic, that's our cue to start debating. Debates remain open until Damian posts a new topic for debate, and at that point we ask that everyone shift over to the new topic. This might be every week, or every month - we'll let him decide when to introduce a new debate. He may decide to go "off topic" sometimes and we can debate an issue outside of autism.
How to suggest a topic:
We welcome your topic suggestions! Simply click on Damian's profile and then click the Contact button. You can use the form on that page to send him a message.
If you are logged in, this link will take you directly to Damian's contact form: https://www.talkaboutautism.org.uk/user/1241/contact
The Ground Rules:
We hope that you will enjoy debating some relevant issues together here in the discussions! All we ask in return is that you respect each other, this community & the wider autism community by:
All in all, just use your best judgement. And if you feel that something has crossed the line, please report it to me or one of the Community Champions and we will take a look.
Have fun debating!